Do I have a reason to have bitchy mood this afternoon? I am going to say yes and no: Yes, I do, and No, I don’t. Smirk.
I am overwhelmed with how many phone calls I must make, phone calls I don’t want to make. I’m overwhelmed by how sickly and hideous I look, and if you’re tempted to console me on that front, stop. I look fucking hideous. Pale, circles under the eyes, wild hair: hideous. And as a side note, the next time a waitress (how is “server” better than that, pray tell?) asks me in a cloying tone, five minutes after my food has arrived, “How is everything tasting?” I’m going to lash out an arm, grab her blonde ponytail, and smash her face repeatedly into my plate. “It! Tastes! Like! This!” If her query involved a grating California inflection (“How is everytheen taaaaasteeen, you guys?”) her ponytail gets severed with my butter knife. Seriously. What the fuck does that question even mean? Let’s break it down:
How: in what manner, I guess
Is: verb, indicating existence
Everything: the stuff on my plate
Tasting: this is where it all goes wrong.
Waiters, servers, stop asking people this idiotic, meaningless question! It’s totally insincere and makes you look like a douche. Yeah, it does.
In other news, I need a lawyer I need a decent lawyer who will handle a medical malpractice suit, and I need one now. I don’t want the guy who advertises on the back of the city bus in his shitty sage green Men’s Wearhouse suit with coordinating pocket handkerchief. I need someone decent and responsive and reliable. Help.
The lawyer I hired to help me with navigating the Byzantine Social Security pitfalls has done, in ten weeks, exactly zero. More phone calls, more good times.
Anyway, the new lawyer I will need should be able to understand that for eighteen months, I complained of acute pain and rectal bleeding, like, bad bleeding. Severe pain. And every time I visited my primary care physician, she shined me on. Even after acknowledging that, oh, yes, there is a mass there, I waited weeks and finally saw another physician. She was instantly alarmed and scheduled a colonoscopy right away. By then, the tumor was eight centimeters long and had metastasized to my liver — another element that was overlooked for, oh, six months.
I understand that I have to be my own advocate. That’s why I kept going back. But nothing happened, and now I am here, with terminal metastatic liver cancer. Prognosis with embolization? Two years. That two years has passed, and so I suppose we can sigh with relief and say, You beat the odds! But you know what it means to me? It means the clock is running out. And I am angry about it, angrier than I have been about anything in my life. For indifferent doctors. Where’s my oncologist now? I called her yesterday about some paperwork I desperately needed, left a message, and got a harried-sounding voicemail from a nurse, telling me, essentially not to bother The Doctor, but to ask someone else. Don’t bother the doctor? Since when does the doctor’s comfort come before the patient’s? Why is this doctor not managing my care? Why is she not looking for clinical trials that might help me? She’s already indicated that it’s too difficult (meaning: pain in the ass for her) to get me a referral to a facility that actually cares about patient health, but I haven’t heard from her in months. I guess that since her great solution of pumping me full of Erbitux failed, she shunted me off elsewhere, has not checked in, and is on to the next patient, whom I assume she’ll also kill.
Bitter? Yeah. Trade livers with me and see how you fucking like it.
I am overwhelmed. Tomorrow, I meet with the drones in HR, and then it’s another afternoon of phone calls and possibly smashing the shit out of some crockery.
I see my life, my stupid little go-nowhere accomplish-nothing life, and as meaningless as it is to you, it is all I have, and because I have not been assertive enough, I handed over the power over my future to the fucking Marx Brothers.
And yes, I know that no one knows the future, but I have a pretty good hint.
And no: there is actually not much you can say. I’m not trying to be flip, but I have endeavored to be positive and do what I’m told and the people in charge have put on their picture hats and gone skipping off to picnic in the fields, Tra la, tra la. You think I’m kidding. I am deadly serious.
I am angry, I am distraught, I am betrayed, I am ineffective. I am overwhelmed. I am not looking on the bright side. I am looking down a long tunnel and I want to notify every single medical professional who let me down exactly how I feel. What good will that do? Should I keep on the sunny side like a good girl, because the doctors are doing their best?
I will tell you right now that if my doctors are doing their best, they should be banned from the medical profession immediately.
Somebody find me a fucking lawyer.




